Disabled, animals need help during floods, too

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 29 December 2014

 

News of the monsoon floods, last week, completely ruined my Christmas mood and celebration.
 

Although I had decided to have a quiet one at home with my dogs and listening to carols on the Internet, I simply couldn't concentrate.
 

By Boxing Day on Friday, the number of people displaced by floods in Kelantan, Terrenganu, Pahang and Perak, rose to a staggering 103,413. It was up by more than 9,000 from the previous night.

And, it is still pouring copious amounts of rain outside, as I write this article. In addition to everything one has to consider about in a tragic flood situation, I couldn't help thinking about two main things: the handicapped, as well as animals caught in the predicament.
 

How were the disabled and the elderly coping? Are they on the "Priority List" in rescue missions' preparation, evacuation and follow-up programmes?
 

Or are they overlooked?
 

Do the village heads or local councils have a list of their names and where to locate them? The handicapped are the ones who need immediate assistance from life-threatening floods.
 

Neighbours can play a key role in this. If they know of a disabled person in the neighbourhood, they should move in quickly to get them out to safety.
 

Rescuers need to get into their homes and even rooms to find them. Wheelchairs are no good in water. So they will need to be physically carried.
 

Better for a trained rescuer to carry individuals. If unsure, ask the handicapped person the proper way to be carried. This is to ensure that no damage is done to their bodies during the rescue process.
Keep wheelchairs available in rescue shelters. Walking sticks, and other aids, should all be regarded with equal importance as wheelchairs.
 

 In moments of a crisis like this, it is important to help victims feel still "in control" of a situation by providing these aids, rather than making them more dependent on others without them.
 

Besides, rescuers can't be with them all the time, as there are others needing help, too.
 

The blind, living alone, are just as vulnerable. Rescuers should call out loudly to them. If they happen to know their names, call out to them.
 

The deaf, on the other hand, are unable to hear any sounds of danger to alert them. By the time they do, it is often too late.
 

So the authorities should take this into account by going the extra mile when searching for the disabled. It would also only make good sense to train staff, with a basic knowledge of sign language, which would be a great advantage.
 

Persons on medications with life-threatening diseases also need special attention. It's important to take them along with you during the rescue.
 

This will be helpful afterwards in the shelter, as their stay could last days and weeks before the crisis is over. Persons on medication are advised to keep their medicines in a water-proof handy bag in event of emergencies.
 

I mentioned animals as my second area of concern.
 

I was thrilled to see some news reports of cats being rescued by our brilliant boys and girls who sacrificed their lives to help the victims of the flooding.
 

However, at the time of writing this, I never saw any pictures of dogs being rescued. Though I have no doubt, that canine owners would have done the same things with their pets in the crisis.
 

If there isn't one now, then it's a plain shame.
 

But I certainly hope that once this flooding problem is over at least, our country will make a serious effort to have a special team to rescue cats and dogs whenever there is a crisis of any kind.
 

I can think of no better reason than to say it's because we are caring Malaysians that we should do this.
 

The "Malaysian Animal Rescue Disaster Team" should be set up by the Department of Veterinary Services, along with the respective 151 local councils throughout the nation.
 

It should be run with utmost professionalism and funded by both the local councils, as well as the federal authority. 
 

And, as for persons with disabilities and the elderly, there is no more excuse now for not getting dead serious about including the participation of persons with disabilities themselves in disaster management planning, awareness and training of emergency response, of all staff to their special needs. – December 29, 2014.
* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

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Surrounded by Santas and Santarinas

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 22 December 2014

 

It’s finally Christmas again this week, folks!
 

Each year, I make it a point during this time to visit at least one shopping centre in the city. This is so that I can take in the mood and atmosphere of the season going around everywhere in order to make my Christmas complete.
 

Even though it's mostly to window shop, checking out shopping complexes has become a personal "traditional must" over the years.

And it has to be done before Xmas eve in order to make everything right. 

 

Last Wednesday was supposed to be THE DAY.
 

I had picked out Mid Valley Megamall in Kuala Lumpur this time as my choice.
 

When you think about it, it's not really hard to see why.
 

They have the most exemplary Santa Clauses, in my opinion.
 

And best of all, they are available all around the year – not just during Xmas.
 

Mid Valley is the only shopping centre that I'm aware of which provides assistance for wheelchair customers – right from the car park.
 

All you have to do is to drive over to their designated disabled friendly underground car park area and honk.
 

If you are lucky, you will be greeted by a great big Santarina, with an even bigger smile to help you park your car.
 

She is one of the security Santarinas and Santas in the mall to open the barrier chains meant to keep able bodied drivers' cars out and allow vehicles with wheelchair logos in.
 

Next, you have to ring the Customer Service Santas (or again, Santarinas) from your mobile phone.
 

And, they will be down with you in a jiffy with your "sleigh" (wheelchair or "Power Shopper") – courtesy from the mall. A Power Shopper is an electric scooter-like, small vehicle – like an electric wheelchair – that helps a disabled shopper to move around in the mall.
 

No need to rush getting yourselves out of the car and into the wheelchairs and Power Shoppers!
 

These Saint Nicholas have loads of patience and smiles with them. They will not only take you to where you want to go, but will return anytime if you are facing any difficulty. 

 

Just ring them again anytime, and certainly when you need to get back to your car.
 

The only thing lacking in their Xmas goodies is that Mid Valley Megamall does not give free parking for disabled drivers.
 

I've suggested this to the management on a few occasions.
Let's hope they play an even bigger Father Christmas and make this wish come true. Every help given to disabled persons will go a long way to making our lives better.
 

Back to my main story now.
 

At the last minute, I wasn't able to make my trip as scheduled to Mid Valley because things suddenly went wrong at home that morning.
 

My three-year old service canine Zhar, my Dobermann, had the runs during the previous night. Because it persisted, I had no choice but to abruptly change my plans for the day.
 

I was a little under the weather myself, to be honest, and could feel an insidious infection coming along.
 

For a dog that takes care of me every day by picking up things and carrying them for me with his mouth – from keys, drinking bottles, TV remote, mobile phone and more – I had no heart to leave him at home by himself.
 

Suddenly, our roles were reversed. For once, with me in my wheelchair, I found myself being his caregiver for the day.
Despite feeling exhausted by the diarrhoea, my Dobermann kept insisting on helping me as usual.
 

My personal Santa on all fours would rush forward to help me pick things up. However, I could see that he didn't understand why he couldn't do it as quickly and energetically as before.
 

But there was a line of other Saint Nicholases to help me along.
 

A friend, whom I shall call "St Michael" who traditionally gives me Christmas lunches each year, was scheduled to meet me that day at noon. I called him hours before our meeting to cancel our appointment.

 

Seeing that he was a very busy businessman, and it being the end of the year and all, I thought that he might be annoyed that my cancellation at the last minute might upset his other plans.
 

He wasn't. 

 

Instead he not only totally understood my situation, but promised to reschedule it again before Xmas.
 

Another appointment during tea time on the same day also had to go. It was a first-time appointment with a woman animal activist.
"I understand completely; get well soon to your doggie and you," she responded in her Short Messaging Service (SMS) within minutes of my message to her.
 

She even went further to enquire the next day about how Zhar and I were doing.
 

My medical doctor – as well as Zhar's veterinarian – also played "Ho Ho Ho Santas" when I needed them most.
 

They kept close contact with me to make sure that man and canine were doing fine. 

 

They armed us with the right professional advice and medication to not only fight off our respective bugs, but also to prevent them from bouncing back.
 

My best able-bodied pal, Andrew Martin, was next at my door with a mop and some cleaning stuff to perform the basics.
 

With so many real life Saint Nicholases around and in my home, Zhar and I don't have to worry about not having the perfect Xmas this week.
 

And I wish you all the same, too. – December 22, 2014.
 

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

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Making sense of our disabled-friendly facilities

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 15 December 2014

 

It's encouraging to see wheelchair logos and disabled-friendly facilities slowly popping up in various places in our towns and cities across the nation.
 

However, if for one minute you think that all is well for the disabled after this - I'm sorry to say that you are sadly mistaken. Because getting to one of them, and trying to use the so-called "conveniences", usually ends up into another story! Particularly, for those with wheelchairs and walking sticks.
 

These problems happen because the issue is not only about providing reserved car parks, special ramps, and others for wheelchair users.

More importantly, it is about putting in plenty of thought and planning beforehand into ensuring that these special facilities are truly convenient and fully functional for those who need them.  

Take, for instance, what happened a couple of days ago to Antony Leopold.
 

The 62-year old, who works as a travel agent in Kuala Lumpur, went to meet a client.
 

The meeting venue was at the Kuala Lumpur International Airport (KLIA) in Sepang. Both are wheelchair users.
 

Leopold, who had poliomyelitis when he was a child, had to drive himself to the airport alone. He couldn't get anyone to accompany him that day.
 

(Leopold uses a pair of callipers - a special walking aid with metal rods and shoes, strapped on both of his legs for support. He also uses two metal walking sticks for both of his hands for balance.)
 

At KLIA's departure hall area, he found more than a dozen reserved car park slots (all empty) for disabled drivers. But alas, they were all blocked by parking barriers!
 

"I had a tough time removing the barriers myself," Leopold lamented to me.
 

"I had to shift and lock my callipers into action. When I was on my feet, I grabbed my walking sticks and had to perform an incredible balancing act stunt to push away the barriers, before getting into my car again to park it.
 

"For people in wheelchairs and unable to walk at all, it would have been impossible to park there," he explained.
 

Leopold pointed out that even though there was an uninterrupted flow of passengers and visitors streaming in and out of the automatic door nearby, no one offered to help him.
 

Not even any of the able-bodied uniformed staff who were walking around.
 

Inside, Leopold faced further obstacles.
 

Realising that it would take a long walk to the meeting point where his friend was waiting, he requested for a wheelchair.
 

Instead of getting the wheelchair for Leopold, the staff pointed him to the direction of another information desk, where the wheelchairs were located.
 

He had to make another long and painstaking walk to the wheelchair counter.
 

Leopold's meeting proper with his friend took only five minutes in the end. However, he had to spend nearly an hour going through his ordeal in KLIA.
 

He had to avoid a couple of walkalators in the process. They were much too dangerous for people like him - as well as the blind - because they could lose their balance and fall when using walkalators.
 

Uncaring non-disabled passengers was another problem.
 

They simply refused to give up the "resting benches" even for a minute despite seeing Leopold struggling to catch his breath in exhaustion.
 

"The least they could have done was to removed their luggage on the seats to let me sit down for a bit," Leopold said.
 

The by now fatigued travel agent, who is married and has three children, was even refused help when he asked one of the staff to accompany him to his car for some assistance when he was leaving.
"Sorry sir, we are too busy right now and your request is not part of our job description," they told him.
 

With more than 25-years experience in the travel industry, Leopold has the following advice for KLIA to consider with regards to disabled and elderly passengers:

• Have a dedicated counter for disabled and elderly passengers. They should be able to access it the moment they arrive (and not somewhere deep inside the airport which requires lengthy walks).
• The special desk should be manned by trained personnel who can assist passengers and visitors with all types of disabilities: wheelchair users, the visually impaired, deaf persons and others.
• Wheelchairs should be promptly provided to the physically disabled or anyone with walking disabilities - including the elderly. Further assistance, like help in pushing their wheelchairs and others should also be provided - if asked - more so for persons who are alone and without help.
• Wheelchair logos should be clearly marked and placed as stand-up signboards. Markings on the ground, as is the practice in KLIA, is ineffective by itself. Failing to do so is also a contributory factor to disabled parking spots being abused by the able-bodied.
• In the inner lanes of both the arrival and departure halls, there must be at least two or three disabled parking available as they genuinely require it. Currently only VIP vehicles, taxis, limousines and vehicles with special permits are allowed.
• Please sensitise the police present at KLIA to the special needs of disabled persons as they keep chasing disabled drivers away who need help. – December 15, 2014.

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

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Disability, a ‘death penalty’ after 50

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 8 December 2014

 

I had a wonderful time last Wednesday. It was International Day of Persons with Disabilities or IDPD.

The first IDPD was announced in 1992 by the United Nations.
Now, nearly quarter of a century later, there are more than one billion disabled people in the world. 

 

This makes persons like me and others officially the largest minority group the world over.

According to statistics by the UN, the majority of us live in developing countries, which we are a part of. 

 

As a person born with a disability - and having successfully made it to 53 years of age last month - my work in advocating for the rights and welfare of disabled people over all the years have showed me one most important thing.
 

And that is, the best way to change the world for the handicapped is through sensitising the non-disabled public about what persons with disabilities have to go through every day of our lives.
 

This is especially so because the disabled live in a society which, largely and frankly, was not built with our special needs and rights in mind.
 

Raising awareness was exactly what I found myself doing on the morning of IDPD.
 

My day started with a live phone-in interview on TRAXXfm.
The station's presenters Roundhead and Mary rang me up on my mobile phone at a quarter past 9am. 

 

I could picture listeners at home, and on the roads, driving in their cars and listening in to us.
 

Our chat, around five minutes or so, was also followed on Twitter and Facebook.
 

I tried to cover as many issues as I could, with the golden opportunity that I had in my hands, to speak to the nation within the short time span.
 

We spoke on technology for the disabled in helping to give them an improved quality of life, which is this year's IDPD theme.
 

I lamented about the fact that most of my wheelchair friends still had no access to computers.
 

"It is sad that IT fairs still focused more on the able-bodied than people with disabilities," I said, as the deejays listened intently and nodded.
 

"Internet service providers should also stop being selfish by giving discounts to disabled subscribers - only to limit their use afterwards, compared to features which are plentifully available to non disabled users," I added.
 

TRAXXfm also asked me about the thorny subject of non-disabled drivers abusing disabled car parks.
 

It was a great chance to remind everyone to never use a disabled car park, unless they are handicapped.
 

"Even a minute or two taken up by an able-bodied driver is hell for the disabled driver, who may never find a parking spot again.
 

"We would like to think that Malaysians are a 'caring lot'. However, the truth of the matter is, the moment we get into our cars, we forget everything and everyone. It's each man for his own, after that."
 

On the bright side, it is good to see members of the public taking positive steps to post pictures of the offending vehicles with their number plates on social media to shame them.
 

One US disabled activist wrote on my Facebook that when such a thing happens in her country, the drivers usually have their cars promptly towed away and slapped with a hefty fine.
 

"If that doesn't happen, they may very well find their tyres 'mysteriously' deflated," she wrote.
 

After the interview, I had to rush over to give another talk on IDPD in Kuala Lumpur that very day. 

 

But not before getting my best able-bodied pal, Andrew Martin, to pop by over to my house a couple of hours before the event to help me get dressed for the occasion.
 

First in the bathroom, and then to wear my pants and shirt. The task was completed with my socks and shoes.
 

At times like these, I wish our government would provide us with "personal attendant care" workers like they do in overseas countries.
 

It is also catching on here in Asia.
 

Even international agencies like the World Health Organisation has urged developing countries to get their act together in providing such a service in preparation with the numbers of elderly persons growing at an alarming pace.
 

Personal attendants are paid by the government to assist the disabled in daily living chores in the house. They will help cook your meals for you, give you a bath, and even wash your clothes, if you are unable to do it for yourself.
 

And there is no charge for this.
 

When I brought this up directly to a welfare minister (who is no longer there now), she just laughed it off and reminded me that "Malaysia is not a welfare state". 

 

She said it in a disapproving tone, sounding almost disgusted with the idea.
 

It's easy for her to talk because she is able-bodied.
 

She is not caught in the same predicament as that of the increasing numbers of physically disabled Malaysians who are ageing, and have no one to turn to for help.
 

For them, more so for those from poor backgrounds, it is an unimaginable nightmare when their parents pass on, and there is no one left to look after them.
 

The Welfare Department is currently looking into such paid caregivers for NGOs for the disabled.
 

But they told me they have not started yet to look into the needs of individuals who live on their own or with their families.
 

Until then, living above the age of 50, will be a virtual "death penalty" for everyone, as experts warn all of us will have a disability or two when we grow older.
 

So, I guess the answer is: "Let's all stop growing older!" – December 8, 2014.
* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

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How far fight against AIDS has come

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 1 December 2014

 

Today, December 1, is World AIDS Day.
The worldwide theme this year is focusing on how to achieve an "AIDS-free generation".
 

According to a recent report on the Voice Of America (VOA) broadcast, the United Nations predicts that if prevention and treatment services are scaled up, the epidemic will no longer be a global threat in 15 years.

However, if the goals are not met, the pandemic could worsen, warns the UN. The Washington-based international radio broadcaster went on to point out that in 1984, there were no drugs targeting HIV and AIDS.
 

Today, however, more than 30 are available.
 

Speaking on VOA, Dr Anthony Fauci, director of the National Institute of Allergy and Infectious Diseases, described the progress in controlling HIV/AIDS as “extraordinary”.
 

He said if a 25-year-old man or woman, for example, was put on anti-retroviral drugs relatively early in the course of his infection – he could live an additional 50 years if he continued to use the drug.
 

The HIV/AIDS expert of more than three decades described this as "one of the most extraordinary accomplishments in biomedical research in translation", concluded the VOA report.
 

Meanwhile, while AIDS became known in the United States in the early 1980s, the first reported case in Malaysia was in 1986.
It was a year before Pink Triangle (PT) – now known as PT Foundation – started providing counselling and social support services for the gay community in the country.
 

I asked Raymond Tai, marketing and communications director of Pink Triangle Foundation, to describe what the situation was like then.
 

"The Internet was still very much in its infancy and a new thing with not a lot of data, especially on AIDS and HIV," he says.
 

"And the only way to get the right kind of information and support was to call up the counselling telephone line that was managed by the trained volunteers from PT.”
 

Tai went on to point out that although Pink Triangle was originally set up to address gender identity and sexual orientation, the onset of HIV/AIDS changed the agenda to also include providing much-needed information on the disease.
 

"Just as in America, there were a lot of paranoia and ignorance about AIDS here, too.
 

"Because it was seen initially as a gay disease, there was a lot of demonising of lesbian, gay, bisexual and transgender persons," says Tai, who has been working full time with PT Foundation since 2007 and has been volunteering there for more than 20 years.
 

"Today, things are better. People are not as ignorant about HIV/AIDS as they once were.
 

"The irrational fear from society is far less. For instance, there is no longer talk about our authorities wanting to send people with HIV or AIDS away to an island in order to isolate them.
 

"There are also more medical opportunities now to be treated for the condition where it is no longer seen as a death sentence leading to a painful death. Although there is still no cure, it is now more of a chronic illness with improved ways on how to treat it."
 

Tai says what is regrettable and negative is that there is now a state campaign to demonise LGBT, sex workers, drug users and other groups who are most vulnerable to HIV/AIDS.
 

"Many of them are vulnerable because of their lifestyles and need help because they do not have enough education on how to stay safe and not become a victim. This is the same for drug users and others who are in the high risk list in getting HIV/AIDS."
 

Because of this, this time, PT Foundation decided to take its education campaign this past weekend to more popular places such as KL Sentral and Nu Sentral in Kuala Lumpur.
 

It turned out to be a carnival mall event, which the organisers hailed as "a huge success".
 

"The public need to get tested. This is to know their status. If they have been infected, it is important to seek treatment at once so that they can have a normal life."
 

Tai cautions that for those who don't know they are positive and refuse to test themselves, it will only be a question of time before they develop AIDS.
 

And by waiting until then, it will be difficult to treat the disease.
HIV remains just as a virus inside the body. It will continue to multiply and ravage the body's immune system so that there is no way for it to protect itself from opportunistic infections that invade the body.
 

Some of these symptoms include pneumonia, tuberculosis and skin cancer.
 

The patient then becomes so sick that he or she will have to go to a hospital and only then discover that he has AIDS.
 

HIV and AIDS can vary from person to person from six months to more than 15 years – from the moment they contract the HIV virus to the time they develop full-blown AIDS.
 

Testing is important because during this time, infected persons can pass on the virus to sexual partners or through needles with partners.
 

"The PT Foundation is the only non-governmental organisation that provides community-based HIV testing and counselling. All testing are fully anonymous: no name or identity card number is required. Everything is strictly confidential and performed in a totally non-judgmental manner."
 

According to him, PT Foundation's service also provides a full follow-up service for those who test positive.
 

HIV-antigen tests, as well as syphilis tests, use rapid test kits with results produced within one hour. They are performed by volunteers and counsellors who are trained by doctors and professionals counsellors arranged by PT Foundation.
 

For information, contact Raymond Tai at:  

 

raymond@ptfmalaysia.org.
 

To find out what is happening for World AIDS Day, please visit here. – December 1, 2014.
 

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/how-far-fight-against-aids-has-come#sthash.zdtALxFt.dpuf

Life begins at 54!

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 24 November 2014

 

My idea of a perfect birthday celebration was what I did last Friday.
I spent some "quality time" with myself – at home – with those I love and the things that matter to me.
 

That was namely: spending long hours playing with my service dogs who are more than mere pets to me, ringing up a few close friends who support and share in my struggles and chatting with others on social media like Facebook and Twitter, which has become my latest pastime and favourite hobby.
Birthdays are very special occasions that should never be missed. This is true especially for me, considering the fact that my family was told by my doctors on the day of my birth that I wouldn't (chuckle) make it past my first birthday.
 

That was the prognosis given to my bewildered parents in the hospital after the medical team broke the news to them that I have spina bifida.
 

Spina bifida is a serious condition in which part of the spine is not fully developed at birth, leaving the nerves in the back without any protection.
 

Fortunately in my situation, however, there was a layer of skin covering the area in my back. When I was born it was only the size of a small pimple or marble.
 

Today, at 54 years of age, it has grown to half the size of a football.
Spina bifida also affected the control of my bladder and bowel movements. It's a condition I have learnt to accept and live with to this day.
 

So you would understand why I couldn't help feeling rather tickled over a story I read last week about an overseas man who became incontinent and was contemplating suicide because he thought it was the end of the world.
 

He wanted to end his life before he became incontinent. He said by doing so, he could call the shots rather than allow a disease to dictate life for him.
 

By the way, needless to say, most of the specialists who attended to me as a baby have already retired or died. I have clearly outlived them and proven them all wrong.
 

I started using a wheelchair at the age of 10. A children's bone specialist conducted surgery on my good leg which was giving me problems. But it only made things worse by making me permanently paralysed.
 

It was an operation that should never have been done. The doctor never admitted this but blamed it on my body instead. "Unfortunately your body failed to respond to my expert treatment," he said, giggling.
 

Believe it or not, he also told me that he would love to have my “legs completely cut off and put (me) in a flower pot”, adding that I “would look very nice”.
 

The hospital wasn't the only one who didn't want to accept responsibility for their actions.
 

The primary school where I was studying also didn't want a cripple in their institute of learning.
 

They gave the excuse that they didn't have a disabled friendly toilet for students in wheelchairs and I was forced to quit school.
 

From then on, it was one horrible episode after another. I spent most of my time at home doing practically nothing with myself until I was back in hospital in my 20s with a couple of nasty pressure sores that refused to heal for over two years.
 

Then my luck started to change in virtual leaps and bounds.
 

A wonderful foreign couple sponsored me to Singapore to have surgery in which my pressure sores were healed in two weeks.
A church pastor taught me to swim. Although it took me nearly a year to graduate from the babies' pool to the adults, the point is I finally made it.
 

An elderly kind lady taught me to play the piano – first, amazingly, via the telephone for weeks and months, until I went over for face-to-face lessons. (Transport was a major problem.)
 

A music specialist relative I had approached earlier laughed at me when I told her about my interest in learning the piano. She suggested that I be “less ambitious instead and try playing the recorder or folk guitar”.
 

However, my biggest achievement came when I took my first bus ride in my wheelchair in Eugene, Oregon in the US.
 

Then it was wheelchair water-skiing in the sea with a speeding motor boat and even white-water river rafting down a famous river!
These were all conducted by an organisation called Mobility International USA whose purpose was to inspire disabled persons all over the globe to challenge themselves first in order to challenge the world.
 

I returned home a much stronger disability activist than I was and began speaking up and writing about disabled rights and issues.
My US trip also inspired me to train service dogs to help me perform daily tasks such as opening doors, picking up objects from the ground and providing animal assisted therapy.
 

I depend on my three special canines, my Dobermann, German Shepherd dog and Shetland sheepdog, to provide such a service to me today.
 

As I spent my birthday last week blowing out the candles on my birthday cake and hugging and playing with my tail-wagging trio, how I wished that those doctors could see me now! – November 24, 2014.  

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/life-begins-at-54#sthash.ZU3xi4nM.dpuf

Animal scientists debate and discuss animal use ethics

Animal scientists’ debate on ethical animal use

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 17 November 2014

 

More than 320 delegates from as many as 22 countries participated at the Asian Federation of Laboratory Animal Science Associations' (Aflas) Congress last Monday.
 

The two-day event which was attended by nations across the Asian, American and European continents – including Oceania – was held at a leading hotel in Kuala Lumpur.
 

The occasion was the sixth of its kind which has taken place every two years since its inception in early 2000 – with 10 laboratory animal science associations from 10 member countries.
The ten nations are China, Chinese Taipei, India, Indonesia, Japan, Korea, Malaysia, Philippines, Singapore and Thailand. 

 

In addition to promoting technical and education cooperation in the field of laboratory animal science, animal welfare is a chief concern for Aflas.
 

The 2014 Aflas Congress was officiated by Datuk Dr Mohamad Azmie b Zakaria, the director-general (DG) of the Department of Veterinary Services Malaysia. In his plenary speech, the DG spoke about the regulatory control of animal use in Malaysia.
 

Other topics were delivered by eminent authorities in their respective fields from animal welfare to various specialists in animal experimentations.
 

One of the key highlights was a paper from Japan by the Japanese Society for Alternatives to Animal Experiments.
 

They stressed that an international agreement of what is known as "the three Rs" – replacement, reduction and refinement – in animal use is something all nations cannot do without.
 

Speakers from the Association for the Assessment and Accreditation for Laboratory Animal Care International covered topics stressing on how vital proper regulation of animal use is in each country in order to bring about good animal welfare practices and good science.
 

Other plenary sessions focused on how to make meaningful translations of cancer research results from animals to humans, and the necessity of “good laboratory practice" (GLP) in producing sound research.
 

Speaking to me after the congress, organising chairman and local veterinarian Dr Goh Yong Meng said that based on feedback received from the participants, the congress had mostly been an enlightening experience for everyone.
 

"It became very evident that as scientists, we have to talk about and keep our focus on the scientific facts and legislation of animal welfare – rather than on the emotionally-driven romantic ideals in animal use," said Dr Goh, who also sits in the committee of the Laboratory Animal Science Association of Malaysia.
 

"We hope that the recently concluded Aflas Congress 2014 will serve as a strong catalyst not only to drive sound animal research in our country and region; but more importantly, to highlight the urgency for the Animal Welfare Act to be legislated in the near future in Malaysia.”
 

Dr Goh, who is also an associate professor in a local university, went on to explain that the Aflas congress came about in response to the 1975 book by the Australian philosopher, Peter Singer called, "Animal Liberation". The book challenges the rights of human beings to use animals for any purpose.
 

That idea grew into the founding philosophical principle of animal liberation movements that were against the use of animals in experiments, integrating principles from an earlier book by British researchers William Russell and Rex Burch in 1959 called, "The Principles of Humane Experimental Technique".
 

According to Dr Goh, the book advocated the "three Rs" in animal experimentation.
 

This approach, he said, enabled animal welfare advocates and researchers to find, and agree on a common solution towards responsible animal use in advancing research.
 

"As a result, the membership of laypersons and/or animal welfare advocates in Institutional Animal Care And Use Committees (IACUC) – a special group officially set up in research/teaching institutions globally – is a common sight which was made mandatory since 1980 in Malaysia.
 

"The outcome has been mutually beneficial, as this movement moderates working together towards finding scientifically valid alternatives to animal use, to safe guarding animal welfare and to ensure responsible use of animals."
 

Citing the Ebola scourge across the globe and a possible vaccine for dengue in the home-front, Dr Goh, who is also a researcher in finding a cure for diabetes among human beings, said that for the first time scientists are being "forced to consider using drugs (on humans) that are still in a development or experimental stage.
 

"The main reason why these drugs and vaccines are delayed is because the regulating authorities want to ensure that the products' risks on humans is at its minimum.
 

"Currently, the best approach is to conduct safety testing which almost certainly uses animal models which is inevitable and mandatory for most regulating agencies in the world, such as the US Food and Drug Administration and the national Pharmaceutical Control Bureau in Malaysia.
 

"While the debate is still on the necessity, morality and validity of animal testing, every medicinal product and medical devices that we use today would have undergone some degree of testing, in non-human species, prior to human clinical trials.
 

"Therefore responsible animal use is a critical aim in regulating animal use in institutions and organisations and institutions with active animal model studies are required to set up an IACUC.
 

"Malaysia's Animal Welfare Bill (scheduled to come out early next year) is currently drafting a law to regulate animal studies in research and development.
 

"This is necessary not only to promote the growth of biotechnology-based knowledge economy in the country, but also to safeguard the nation from being used as an outsourcing ground for animal tests that cannot be performed, or even deemed excessive in developed countries," said Dr Goh. – November 17, 2014.  

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/animal-scientists-debate-on-ethical-animal-use#sthash.fduVT2wu.dpuf

Plight of domestic workers

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 10 November 2014

Malaysia is blessed with a diverse number of religious festivals and holidays.
However, the sad reality is not everyone gets to celebrate them when they come around.
The recent Deepavali, for instance, is a good example.

About 30 domestic workers in Kajang, Selangor, say they did not enjoy the religious holiday with their families because of the predicament that they are in – and the little or no support that they get from the authorities.     Thenmoly Barack, 32, is project officer of Friends of Women's Organisation Selangor (Persatuan Sahabat Wanita Selangor or PSWS). She joined the non-governmental organisation in 2008, although it has been in existence for 30 years.
Thenmoly told me recently about what the ongoing struggle is like for many women domestic workers through the life of one Saras M (not her real name).
Saras, 49, is the mother of two. Her boy, the eldest, is 10. Her girl is nine.
Saras became a single parent when her husband left her nine years ago.
Things became increasingly tough over each Deepavali after that for her family – especially with bread-and-butter issues.
"Deepavali last month was particularly miserable for them," Thenmoly says.
"Saras only had RM50 to spend for the occasion and the single mum was torn between getting her children what they wanted and what they really needed."
After a long decision, Saras decided to spend RM10 on some fireworks so as not to disappoint her eager children. RM6 went towards some festive cookies. The rest of the money was spent on meals with nothing left for new clothes.
It is never easy looking after growing children when you are a domestic worker.
Saras begins her day at 4am. After preparing breakfast for her children and getting them ready for school, work starts at 8am.
The single mother is game for anything – as long as it puts food on the table for the children every day. Then there are also the kids’ educational needs and bills to take care of.
Saras does virtually everything her employers tell her to in their homes. This includes cleaning, cooking, bathing their kids to washing their cars.
She will go to any home as long as she isn't busy working somewhere else – anything to earn an extra ringgit or two.
And because she is so desperate, even insults fail to deter her.
One of her current employers forbids her from using their bathroom because they don't like the idea of "people like her" using it. So she has to go to the nearest shop to use the facilities when nature calls.
Her children who sometimes tag along are not allowed inside the house. They wait outside instead, or play along the roadside while waiting for their mother.
Saras works at least 12 hours a day, hoping to make extra cash whenever she can. She makes an average of about RM700 to RM800 a month. On a good month, an extra RM100 goes a long way.
"Life simply isn't fair for many of the domestic workers like Saras. The amount they make with such hard labour is not worth or equal to the effort which they put in – and employers often exploit such situations," says Thenmoly.
"There is no quality of life or a future for women domestic workers, in particular, who are also single parents, unless attitudes start changing significantly in our society," she adds.
Thenmoly says domestic workers are not given a minimum wage, Employees Providence Fund (EPF) contributions and social security (Socso) or even insurance to protect them when they are sick or injured in a job hazard.
"This is why we at PSWS are empowering these women to form a union with a woman domestic worker as a leader where they will at last be able to voice their concerns to the relevant authorities.
"Most of these 30-odd women are single mothers, except for a couple who are married. However, they receive no support from their husbands," says Thenmoly.
To get in touch with her if you would like to help PSWS in its mission, call: Office 03-8737 8380 or mobile: 010-5072 131. Email: sahabatwanita@gmail.com. – November 10, 2014.
* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/plight-of-domestic-workers#sthash.k9oqPigA.dpuf

Creating history with the Penang Parkinson’s Disease Association

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 3 November 2014

Madelene Ong (front row, fourth left) holds a tambourine at the launch of the Penang Parkinson's Disease Association (PPDA). – November 3, 2014.

 

Local history was created on October 26 for persons with disabilities in Penang with the launching of the first nongovernmental organisation for People with Parkinson's (PwP) in the popular island.

Called the "Penang Parkinson's Disease Association" (PPDA) or in Bahasa Melayu, "Persatuan Penyakit Parkinson Pulau Pinang", the epoch-making morning event began at 9am and ended at lunchtime.
It was held under a large tent in the open field at the Polo Ground situated in front of the governor's mansion in Seri Mutiara.
Jointly organised by the Penang Multiple Sclerosis Support Group (PMSSG), the occasion drew as many as 120 persons. They comprised committee members, volunteers, sponsors and members of the public.

Participants were treated to a variety of activities.
These included a couple of speeches by both presidents of the organising societies.
 

Peter Lim spoke first on behalf of PMSSG whilst Madelene Ong gave her speech for the PPDA.
 

This was followed with the customary ribbon-cutting ceremony to declare the event open.
 

The presentation of donations took place afterwards by various companies and groups to both societies.
 

An informative talk about Parkinson's disease – as well as multiple sclerosis (MS) – was delivered by a Penang neurologist with a special expertise on the conditions.
 

The audience were all ears when he disclosed the latest findings and treatments on Parkinson's and MS. There is no cure for both diseases to this day.
 

However, the most interesting part of the event was a special walk to create awareness about the two health issues.
 

Each participant had to choose a partner for the walk.
 

They had to tie one of their legs with the other as a couple for the exercise which lasted about 20 minutes.
 

The purpose of the session was to illustrate the fact that with or without disabilities, all human beings are interdependent on each other.
 

The half-day programme also included a therapeutic drum musical session. It went on for almost an hour and had almost everyone dancing to its pulsating and intoxicating rhythm and beats.
 

The lucky draw was the final activity for the day before everyone left with smiling faces.
 

After the event, Madelene Ong, 47, who lives in Farlim, Penang, told me she was extremely happy that everything turned out to be a great success.
 

"The estimated 400-odd patients with Parkinson's in the island – and others in future – have an NGO support group to turn to now," said Ong who works as a part-time state registered clinical researcher.
 

"Previously, PwP in Penang had to depend on the Malaysian Parkinson's Disease Association all the way in Kuala Lumpur for support, which they did very well, but with this new chapter and NGO, help is much closer now," she said.
 

Ong was inspired to take up the struggle of PwP after her dad, Peter, was diagnosed with the sinister disease in 2011. He passed away last year.
 

Today Ong vows that she is here to stay for PwP.
 

"We now have a little over 20 members in PPDA. The more mobile ones attend our monthly meetings which proves to be a very empowering experience for them," explained Ong.
 

"However, the bigger challenge will be to get members in wheelchairs who are in the advanced stage of Parkinson's to also take part in our programmes."
 

On the issue of welfare, Ong said the PPDA's major task is to get the government to recognise all PwP as disabled persons – regardless of the fact whether they are at the early, intermediate or advanced stage of the disease.
 

PPDA, which was officially registered on the August 8 this year, had made a request of this through a letter by a Parkinson's specialist. 

 

However, it was rejected by the Welfare Department.
 

Several members from PPDA faced the same situation when they tried to apply directly for the disabled identification card from the government.
 

Madelene can be contacted at 0162054388 or go to the Penang Parkinson's Disease Association on Facebook. – November 3, 2014.  

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/creating-history-with-the-penang-parkinsons-disease-association#sthash.nwzjvJDx.dpuf

Angel of Light for Deepavali

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 26 October 2014

 

The Festival of Lights – or Deepavali – was celebrated by Hindus the world over and here in Malaysia, on Wednesday.
 

Many Malaysians chose to commemorate the auspicious occasion by cleaning and decorating their homes and offices.
 

Others, as usual, bought new clothes, participated in special prayers and held open houses for their families and friends.
But for some people in particular, this year's festive event took on a more significant meaning of the true spirit of the season – exemplifying victory of light over darkness, good over evil and hope over despair. 

 

ML, 40, has elephantiasis. The incurable condition has caused the right leg to swell to a massive proportion.
 

It is also a painful disability which has made her unable to walk permanently.
 

Elephantiasis has not only robbed the mother of three school-going children of mobility, but she also finds herself constantly depressed and lonely.
 

She suffers stigma from what others in her neighbourhood think about her and is now virtually trapped in poverty.
 

ML became a single mum when her husband died three years ago.
She is now being cared for by her elderly mother who lives with her. ML's mother cooks and looks after her children.
 

Fortunately for the family, who live in Klang in Selangor, they are being helped by an "Angel of Light".
 

The service centre run by Sri Andalas assemblyman Dr Xavier Jayakumar in Taman Seri Mewah 4 has been providing them with a variety of aids, from immediate needs to long term.
 

These include food provisions to schoolbooks and uniforms and monthly bus fares for each of ML's children who live about 5km from the school.  
 

Another key assistance is in providing transport money for taxi fares.
 

This is to ensure that ML doesn't miss any of her regular medical check-ups. She visits a specialist at the University Malaya Medical Centre in Petaling Jaya.
 

Her regular trips are also to collect her medication.
 

ML's monthly rentals for her low-cost flat are also taken care of by the assemblyman's office.
 

Although all she can do now – because of the condition – is to sit in a chair all day, ML feels a great sense of relief that many of her basic needs are met, thanks to the help she and her family are receiving from the Sri Andalas service centre.
 

SF, 35, is another woman whom the centre has also been assisting.
Born blind, she is a mother of four children – the eldest being 16 and the youngest six.
 

SF lost her husband in 2006. He died in prison, leaving behind his loved ones with the loss of the only breadwinner (as a driver) in the family.
 

To make matters worse, SF and all her children had no birth certificates at the time. And things only got off from the frying pan into the fire.
 

A so-called "good Samaritan" offered to help SF get their legal documents. The situation, however, ended up with the "kind man" taking advantage of her situation and raping her.
 

He was never seen again after that.
 

The family approached the Sri Andalas office in desperation in 2010.
 

Then began the long and arduous journey to help SF and the family to get the documents they needed.
 

First, a death certificate of the father was obtained.
 

Then it took countless trips to Port Dickson's (PD) government hospital in Negri Sembilan where SF was born.
 

The trouble was in tracing documents that were already 30 years old and no longer recorded.
 

SF had to make a number of trips with the help of the assemblyman's office to the various departments in PD just to keep the authorities "serious and interested" in their mission.
 

This took nearly a month to accomplish. 
 

All the hard work and persistence paid off. Everyone got their birth certificates last September – including the identity card for SF's 16-year-old son.
 

Last year, on November 8, was the first Deepavali the entire family celebrated having their official documents with them.
 

This year as many as 500 people in need received a RM100 voucher each to shop for their basic needs. Both SF and ML were among the recipients.
 

For more information, please contact: Pejabat Perkhidmatan Wakil Rakyat, Dun Sri Andalas, No 15a, Jalan Mohd Tahir 8, Taman Seri Mewah 4, off Jalan Sungei Jati 41200 Kelang. Telephone: 03-3373 4595 & 3374 4595.
 

The office is open on weekdays from 9am-5pm. On Saturdays, 9am-1pm. It is closed on Sundays and public holidays. – October 26, 2014.  

* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/angel-of-light-for-deepavali#sthash.gobqSCNR.dpuf

No King's Treatment in Hotel Istana

A hotel ‘misadventure’ Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Published: 19 October 2014

For most of us, spending a business trip or simply staying in a hotel just for a break in Kuala Lumpur is a pleasurable experience. But not if you are in a wheelchair – even if there happens to be disabled-friendly logos in the building!

This is unfortunately and sadly true for many, if not, most hotels in Malaysia.

The situation becomes more complicated and frustrating for patrons with disabilities –whether they decide to visit in their wheelchairs, white canes or walking sticks. It's also a problem for people without disabilities when they decide to bring along their elderly parents, disabled children or handicapped friends.

Last month, I had the opportunity to attend a two-day conference on children with disabilities in Hotel Istana over at Jalan Raja Chulan in Kuala Lumpur.

Little did I suspect that this popular hotel in one of the best locations in KL with its spacious indoor landscaping and pillarless ballroom would pose quite a challenge for me and my wheelchair.
Here are a few examples:

No reserved car parking for disabled drivers at the entrance: luckily, I got someone to ferry me there and back.

What if I had driven there? A friend working in the hotel line once told me that some hotels actually had a policy of "only allowing BMWs and Mercedes-Benzs to park at the entrances." They did this because they wanted to promote a "classy" look in hotels.

I vehemently disagree. On the contrary, hotels that provide handicapped parking show the world that theirs is a caring hotel and they have gone the extra mile to look into the comfort and convenience of all its patrons, especially the disadvantaged.

Wheelchairs couldn't enter the disabled friendly restrooms: I was shocked to discover this.
I must have looked pretty awkward and comical to the rest of the non-disabled patrons with the back of my wheelchair with its two big wheels sticking out of the toilet's doorway with the rest of my other half inside.

Even if I did manage to get inside, it was too cramped to get to the water closet. The only way would be to I get up and literally walked over to it which was impossible in my case. Istana really needs to widen this up into a room space not only large enough for a wheelchair, but also for an able-bodied helper as well.

Dangerous makeshift ramp at the Taman Sari Brasserie restaurant: the portable ramp was used over a couple of steps in order to bring my wheelchair down to the dining area as well as back up to the reception floor again.

It was not only too small but also treacherously steep. Three of the employees had to help me over it, which experience has taught me, is only a foolish thing to do as they are not trained to handle wheelchairs. Wheelchairs, too, were never designed to be carried.

No disabled-friendly rooms out of the 505 total guestrooms in Istana's 23 floors: I was verbally told this by the staff. It's high-time that at least one or two rooms should be made disabled friendly for the benefit of Istana itself.

Many disabled people from around the world are travelling these days and there is no reason for Malaysia not to be a favourite destination for the disabled and the elderly.

The good news is, there is fortunately a happy ending to this story.

During my visit to Hotel Istana, I managed to highlight these and other issues of accessibility to Tom Spaan, the hotel's director of food and beverage.

We went on a tour around the hotel.

He wrote back apologising for the inconveniences I experienced and said Hotel Istana was in the process of getting a suitable contractor and would get the corrections done soon.
"Once again, please accept our sincere apologies as we are looking forward to welcoming you back at Hotel Istana in a not too distance future," Spaan concluded.

Needless to say, you can bet that when that happens, not only me but all wheelchair users will truly be made to feel like kings in the hotel, which is a 10-minute walk from the Kuala Lumpur Convention Centre and Petronas Twin Towers. – October 19, 2014.
* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider. - See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/a-hotel-misadventure#sthash.fjcNRqv0.dpuf

Budget that places the disabled last

A budget that places the disabled last

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 12 October 2014

 

I don't wish to be a big meanie and try to burst anyone's bubble out there, but the latest budget tabled in Parliament on Friday will certainly go down in history as one of the biggest let-downs in recent years for the handicapped in Malaysia.
 

And it's not really hard to see why "Budget 2015", this time, drew many unhappy faces.
RM50 increase in monthly allowance for the disabled who are working:
Please note that this new jump of allowance of RM350 from RM300 only applies to those who qualify for it. Their salaries cannot be more than RM1,200 a month. So don't be misled into thinking that all disabled people with jobs are going to get it.
 

Furthermore, some applicants for the allowance say their requests were rejected when welfare officers discovered satellite television and refrigerators in their homes, regardless of who pays for them.
 

Some disabled recipients of the employment aid have even accused the welfare officers of cutting their money midway without even informing them about it. They are then made to reapply for it which involves a whole tedious process.
 

It doesn't take a rocket scientist to figure out how low and negligible RM50 really is for the handicapped.
 

A decent wheelchair can cost as much as RM2,000 and electric ones are five times that amount. Let's also not forget that repairs and maintenance costs also run into the hundreds.
 

What does one do when there is no choice but to get them fixed?
 

Then, there are increasing medical bills to consider. These are related to their various types of disabilities which often keep the handicapped – even if he or she is employed – in the same financial position where they started.
 

The main reason for their disappointment is disabled groups have been lobbying the government instead for a monthly RM500 living allowance for all disabled people in Malaysia, regardless if they are working or not.
 

That clearly fell on deaf ears with Budget 2015, leaving them to feel as if what they are being offered instead are scraps from the government's table.
 

RM50 increase to RM200 allowance for the jobless disabled: this is, unfortunately, a bit of a misnomer, too.
 

Unemployed disabled people whom I met did not necessarily get the full RM150 (the old amount). Some would get RM30, others RM60. Only one I knew received a maximum of RM90 a month – not a single sen more.
 

And come on now, RM200 for the jobless? Shouldn't it be more like 10 times the amount when you have nothing in your hands?
 

I can't imagine our prime minister or welfare minister being forced to look after themselves with only that amount of money!
 

The problem was in some of the welfare officers making arbitrary decisions on the amount based obviously on their own personal "handicapped" thinking.
 

The officers assumed that all jobless disabled people were just "plain lazy" – even if they were bedridden or struggling to be employed because of their genuine conditions.
 

The budget promises "RM1.2 billion in financial assistance for poor families, children, senior citizens and the disabled" in that order.
 

Considering the fact that the United Nations officially defines the disabled as the "poorest of the poor" in any and every society of the world, perhaps we ought to rearrange that listing a little bit and place the disabled first, rather than in the last category.
 

The UN also has the disabled as the "largest minority group in the world".
 

And another thing to ensure that the disabled do in fact get the aid that they so badly need in our society, we should not only put in a lion's share into their development but give plenty of thought on how that can be best achieved.
 

Finally, the National Council for Persons with Disabilities gets an annual grant of RM1million. Why this amount for a group that barely meets four times a year? What has it done to improve the quality of the disabled’s lives in society when they hardly interact with the disabled community?
Perhaps the biggest question (and disappointment) we all need to ask is what has the new disabled senator who sits in a wheelchair done to give us a good budget?
 

There is no point in blaming the prime minister or even the welfare minister, when people who have the experience of handicap fail to use their gifts to educate those who are "less informed". – October 12, 2014.
* This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/a-budget-that-places-the-disabled-last#sthash.TEXA5VKW.dpuf

A guide dog for the blind that made others see red

On guide dogs for the blind

Anthony SB Thanasayan

Anthony SB Thanasayan is a wheelchair user who is powered by his service dogs who help him stay on top of life. He is president of Malaysia's first and only animal-assisted therapy society called Petpositive.

Anthony SB Thanasayan

Published: 7 October 2014

 

Animal lovers around the globe celebrated World Animal Day on October 4, marking the event, which was set up in 1931, with a variety of activities to bring attention to the plight of all animals and our relationship with them as human beings.
 

While most of these efforts are often laudable and do much to raise awareness about the unique role that animals play in enriching our lives; some, unfortunately, fall way below the mark.
Recently a video of a blind man trying to take his guide dog around Kuala Lumpur caught the attention and admiration of many, mostly sighted persons.
They saw a man and his canine guide trying to get into a bus and a taxi but was shooed away because of the animal. This, despite the fact that the individual had tried to explain to them that his pet was a special assistant. The duo received the same treatment when they tried to access into a shopping complex. They were promptly surrounded by the security staff and showed the door.
 

No amount of explanation succeeded to convince the authorities to let them in as a special case.
As a result, the video, and a number of media that carried the story afterwards, concluded that Malaysians were an uncaring bunch who refused to consider the needs of those with really special needs.
 

The blind, however, especially those who have been championing for their rights only saw red in the video.
 

Whilst they too were in support for assistance dogs in Malaysia one day, they argued that the video and the stories in the media were at best half-baked and full of distortions about the situation of the blind in the country.
 

A spokesperson for a blind organisation who didn't want to be named said, "The video caused a lot of damage to the image of the blind in Malaysia.
 

"It went overboard in emphasising the usefulness of guide dogs by implying that the blind in Malaysia can't have a high quality of life and purpose without service animals.
 

"This is utter rubbish. It unfairly devalues the purpose of white canes which aid the blind to go about anywhere they want. It is an indispensible tool for the blind, even for those who have guide dogs."
 

Another visually impaired Malaysian William Koh, who lives in Melbourne, Australia, and has been using a guide dog since he became totally blind through glaucoma points out that there must be a strong and viable support service in any country that wishes to start a guide-dog service.
"The dog, for instance, must be trained in Malaysia's particular surrounding (with all the relevant bodies involved) in order for the animal to work effectively," he explained.
 

William went on to point out that he had to stay with his guide-dog-to-be for a full month in the training centre before they graduated from class.
 

In all that time, he had to prove to the trainers that he was able to take care of the basic needs of his dog like feeding, bathing and general care.
 

If there was any problem such as William's canine not being able to adapt to his new partner or vice versa, the centre would try to see if another canine was available as suitability was a key ingredient in all guide dog applicants.
 

(This was not shown in the video. Instead, the dog was brought to the blind man in his home. Another situation that doesn't work with guide dog training.)
 

After the full month orientation programme, a human trainer was sent to William's home to work with his dog. They had to teach the guide dog how to go to the bank, post office and other places where William frequented in his normal activities before the duo were paired off successfully.
 

Some of the other concerns are:
 

• Guide dogs need to be properly trained and accredited to internationally recognised guide dog organisations.
 

• How will dogs that are not trained in Malaysia be able to cross our infamous streets where vehicles are known to dash through red lights when crossing - especially motorcycles?
 

• What happens if stray dogs which are common in Malaysia attack guide dogs and their human partners?
 

• Guide dogs in Australia cost A$30,000 (RM86,000). William got his free of charge from the Seeing Eye Dog of Australia. Will the same be done in Malaysia after they are trained locally?
The bottom line is the answer to having guide dogs in Malaysia will never work just by importing an animal from overseas. They must be trained locally. This must include all the relevant parties, private and government bodies to get involved with more ongoing awareness about the purpose of such canines in our society.
 

It is not a matter of simply blaming people of being uncaring. – October 7, 2014.
 

*This is the personal opinion of the writer or publication and does not necessarily represent the views of The Malaysian Insider.

- See more at: http://www.themalaysianinsider.com/opinion/anthony-sb-thanasayan/article/on-guide-dogs-for-the-blind#sthash.odc4amz3.dpuf